Mary Meaux/ Dallas Morning
News
To
Kendra Francis, dialysis was a normal part of life.
For two years and three months the tiny-framed Francis underwent
dialysis,
a
necessary form of treatment for people in the end stages of renal
disease.
Francis was diagnosed with juvenile diabetes at the age of 11, a
disease
that eventually caused her kidneys to fail and her to ultimately
seek a
transplant.
Daily injections of insulin, blood sugar level checks and a special
diet
helped the youngster stay healthy for the next 13 years.
Then, in 200,1 her feet and legs began to swell. The swelling was
so bad
she
could only wear sandals and flip-flops. Her blood pressure soared.
A
college
student at the time, Francis spent all of spring break in the hospital.
By March 2002, the 1998 Lincoln High School graduate was undergoing
dialysis
treatments Monday, Wednesday and Friday afternoons after her classes
at
Lamar University. Later her dialysis was changed to began at 5 a.m.
"That was good. That way I had the rest of the day to myself,"
Francis
said
recently from her immaculate Port Arthur apartment. "After
being on
dialysis
for so long, it becomes part of your life, like getting up, washing
your
face and brushing your teeth."
While undergoing treatments, Francis had to alter her diet considerably.
"The kidneys act as filters," she begins. "So I wasn't
allowed dark
colored
sodas and no potassium. I used to love to eat bananas but I couldn't.
I
haven't ate a banana in more than two years. Now, I think I've lost
my
taste
for them. Also, I had to watch for tomato and tomato products and
take a
calcium binder so my bones wouldn't get too thin."
The young woman had to monitor her fluid intake as well.
"Six cups of liquid a day," she said," That included
water, Jell-O, gravy,
ice cream."
Francis eventually was placed on a transplant waiting list. The
call that
changed her life came at 5:30 a.m. one May morning. By 10:30 p.m.
that
night
she was in surgery for a kidney and pancreas transplant. All together
she
spent about a month in the hospital. She has been home since June
30.
The small sized woman slowly lifts her shirt enough to show a large
"J"
shaped incision. Several other scars to her right side are from
her
dialysis.
"I feel like I have a new life," she said as her eyes
began to tear up.
Francis' story is not just a story of one woman's new lease on life
and
the
tough road she has traveled. Her story is a story to bring about
awareness
and possibly change lives.
August 1st is the eighth anniversary of National Minority Donor
Awareness
Day -- a time set aside to educate people about the importance of
organ
and
tissue donation.
Pam Silvestri, Community Education Director for Southwest Transplant
Alliance, said in 2003, organ donation in the Beaumont/Port Arthur
area
saw
a 50 percent increase.
Locally, 71.43 percent of Caucasian families consented to donation
and 60 percent of African American families consented to donation.
"A key message to get across on Minority Donor Day is this
-- it is no
longer true that minorities don't donate. That may have been true
years
ago,
but these days, thanks to better community education programs and
better
knowledge of how to support families, consent rates among minorities
are
much higher than they used to be," Silvestri said.
"Before this, I had never thought of donating organs,"
Francis said.
She said it seems selfish not donate organs to help others, to bury
a
cadaver without thinking of donating the organs.
Today, Francis is a healthy young woman. She eats what she wants
and is no
longer insulin dependent. Though weak, the Port Arthur resident
paces
herself -- she recently baked a German chocolate cake but it took
all day
to
make the cake because she had to rest frequently between the required
tasks.
But now she's able to have her cake and eat it too.
The future for Francis looks bright. With a bachelor of business
degree
under her belt, Francis will one day be able to begin a career when
her
health allows.
Organ donation
What is National Minority Donor Awareness Day and why is it important?
National Minority Donor Awareness Day is a time set aside to highlight
the
importance of organ and tissue donation. It's always on August 1st
of each
year. Its goal is to inspire people from all racial and ethnic groups
to become
donors. This year, National Minority Donor Awareness Day is celebrating
its
8th anniversary. It's important because it provides another opportunity to reach
African Americans with information about organ and tissue donation.
Why is it important for the black community to become donors?
The black community is in desperate need for black organ and tissue
donors. We are facing a public health crisis. Over the past decade, there has been a 166 percent increase in the
number
of
blacks waiting for organ transplants. While blacks comprise 26 percent of individuals on the national
transplant
waiting list, they represent only 13 percent of organ donors. (In
Texas
blacks comprise 27 percent of those needing a transplant, and just
11 percent
of organ donors) Statistically, blacks have the best chance of being matched for
a kidney
transplant if the donor is also black. Tragically, every 13 minutes another name is added to the waiting
list and
17 people die each day due to lack of organs.
What prevents some members of the black community from becoming
organ
donors?
Blacks do not have organ and tissue donation on their "radar"
screen-it's
simply not top of mind. They are not aware of the large number of blacks who are waiting
for
transplants. There is a perception that blacks do not have the same access to
organ
transplants as whites. The government pays for kidney transplants.
Some are afraid that they will not receive the best medical treatment
in a
life-threatening emergency if they were a known "organ donor." They are reluctant to sign any formal documents that commit them
to this
decision. Just tell family members what you want to do to ensure
that your
wishes are carried out.
Does the black church support organ and tissue donation?
Most religions support organ and tissue donation and see it as the
final
act
of love and generosity towards others.
Is there a need for any particular organ among the black community?
Yes. Kidneys are at the top of the list. While 13 percent of the
U.S.
population is black, 35 percent of those waiting for a kidney transplant
are
black. Currently, more than 23,000 blacks are waiting for kidney transplants.
For
these patients, the lack of available organs means longer waiting
periods
on
transplant lists, years spent on dialysis, and sometimes death.
Why is the need for kidneys so high among blacks?
Black Americans are disproportionately affected by illnesses that
can lead
to end-stage renal disease and the need for dialysis or a kidney
transplant. These diseases include high blood pressure and diabetes.
How much does it cost to be a donor?
There is no cost to the donor's family or estate.
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