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Anthony
Davis, Texarkana Gazette
Texarkana's Natalie Banks was nicknamed "Noodles" by her
mother, Kimberly,
because she squirmed and wriggled "like a wet noodle."
After 10 years Kimberly, Natalie's father Greg, and brothers Greg
Jr., 14,
and Cameron, 13, continue to use the nickname occasionally, but
she will
always be "Noodles" to Kimberly, who has seen her courageous
daughter
endure two liver transplants in her young lifetime.
Both transplants took place at Chicago Children's Hospital, roughly
six years apart.
Natalie was born with biliary artesia, a liver disease in infants
with no
known cause. It occurs in one in every 20,000 live births and results
in
inflammation and obstruction of the ducts that carry bile from the
liver to
the intestine. Fairly soon, the disease process leads to cirrhosis
when
liver cells are destroyed and replaced by scar tissue.
But to see Natalie's smiling face as she sits next to Kimberly on
the couch,
one wouldn't suspect that an anguishing roller-coaster ride of doubts,
fears
and prayer and rejoicing had lead them to this point. Kimberly has
compiled
a history of Natalie's transplant experiences that also focuses
on the
reactions of herself and her husband.
Entitled "Baby Noodles-The Story of a Liver Transplant Recipient,"
Kimberly
has assembled a poignant, personal and spiritual guide geared to
the parents
of childhood transplant recipients. It is drawn from the flux of
her
experience as parent trying to find meaning and peace when confronted
with a
child who will not survive without the goodness of others and the
grace of
God.
"Your child has a liver disease, and she needs immediate medical
attention
... like yesterday," were the doctor's words ringing in Kimberly's
ears when
she took Natalie in for her 2-month infant exam. Next was one of
many future
harried trips to and from Little Rock's Children's Hospital, airports,
shuttles, and cabs from Chicago to Texarkana and back.
For Kimberly, her foreseeable future would be consumed by taking
meticulous
care of Natalie, spending untold hours and sometimes days in hospital
waiting rooms, bedside care and almost constant prayer.
"The doctors diagnosed her at her 2-months check-up and immediately
sent her to Children's Hospital for a biopsy. It confirmed she had
biliary artesia.
They put her on 13 medications and put her at the top of the donor
list.
Noodles had one sickness after sickness, fever after fever and
hospitalizations, one after the other. The people in the emergency
rooms
knew my name. I prayed for relief, not just for me, but for Noodles
as
well," Kimberly said.
Just as Kimberly was about to reach her personal breaking point
in praying
and care-giving, the call from Children's Hospital in Chicago finally
came
through while the family sat in at a revival assembly. Fighting
back
disorientation as to what to do next, Kimberly knew they had to
get from
Texarkana to Chicago by 8 a.m. the next morning or the liver would
go to
another recipient.
Greg attempted to contact LifeNet to seek their assistance. Simultaneously,
LifeNet representatives were trying to contact the Banks to volunteer
a
helicopter flight to Dallas. Not fully packed and short on funds,
Kimberly
and Natalie arrived at DFW airport without sufficient funds to pay
for the
flight to Chicago. Not to be foiled, Kimberly prevailed upon the
airlines'
ticket agent and supervisor to process the ticket on her ATM card.
And they were off to Chicago for a new liver and a new life for
Natalie.
"I almost fainted when I saw Noodles for the first time after
the surgery."
Kimberly writes in her memoirs. "The attending nurse apologized
for not
having enough time to wash her off. She was covered with blood and
with
staples running up and down her chest.
"There were all kinds of lights blinking with machines and
tubes connected
to her from everywhere. She was so swollen I didn't even recognize
my own
child. Just hours ago she was laughing and playing. Now, she was
fighting
for her life."
Natalie was allowed to return home to Texarkana after about two
months of
post-transplant recovery, during which she had the typical post-operative
problems, but no warning signs of rejection of her new liver she
had
received from an organ donor.
For the next six years, life around the Banks' home gradually returned
to
normal. Natalie returned to Spring Lake Park Elementary School,
Cameron and
Greg Jr. continued their interests and school work and Greg Sr.
completed
his training to become a minister. He has since founded his own
congregation
at Daylight Christian Church, a nondenominational/Bible-based ministry
for
which Greg serves as pastor.
In 2001, Natalie was seen for a routine liver biopsy because it
was thought
her body might be rejecting the liver. While conducting the biopsy,
a
cyst-like area was punctured, "releasing all kinds of bugs,"
Kimberly said.
Natalie ran a serious, spiking fever for several days and was sent
back to
Chicago to address the reasons for the fever. The hospital released
her back
to Texarkana. Within days Natalie and Kimberly found themselves
back in
Chicago with her liver beginning to shut down.
"I felt like a yo-yo going back and back and forth. I called
and left a
message with my job I was going back to Chicago. It was only four
days ago
when we left Chicago, and now, we were on the way back. I wondered
when I
would wake up from this horrible dream," said Kimberly.
Natalie was now old enough to know what words like "exploratory
surgery"
meant, and she was frightened and nervous this time around. Doctors
and
specialists came and went from her hospital room, all seeking the
clue as to
how Natalie needed to be treated. Multiple tests, surgeries and
intensive
care unit stays were a painful but necessary part of this search.
The next two weeks saw Natalie, still in surgical intensive care
with an
open wound covered by surgical cloth, now awaiting a second transplant.
She
was moved to the top of the list again and placed in a medically
induced
state of paralysis so she would remain completely still.
Kimberly was again desperate and alone with her child at a time
of grave
illness. She found a computer and e-mailed a "healing"
prayer she had found
in a prayer book to everyone she knew. Kimberly had come to the
threshold of
her physical energy and spiritual strength.
"God, I am so tired of watching Noodles suffer. Take her with
You or heal
her," she pleaded for relief.
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