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By Amy Morenz, Staff writer
Sunday, April 9, 2006 1:10 AM CDT
Every time Joan Saltsberg gets out of bed, she thanks the family who donated the kidney that keeps her digestive juices flowing.
Saltsberg, 56, is a walking testimony to the power of organ transplants.
Not only did she donate her own kidney to her sister Ellen Roesch, who later died, she and another sister, Marcia Weinreb, are both living with donated kidneys today.
Saltsberg still has a close relationship with her donated kidney 16 years after her transplant. She calls it "Kenny" and has a birthday party every five years featuring a kidney-shaped cake. She and the widow who donated the kidney cried when they met.
"It was a very emotional and tearful moment," she said. "Even today, when I wake up, I tell Kenny to keep on working. I wouldn't be here if I had to live with dialysis and its complications. Three of four people in my family have died from kidney disease."
April is National Organ Tissue Donor Awareness Month, and Saltsberg readily tells the story of how one organ can make a difference in a quality of life. One organ and tissue donor can save and enhance up to 50 lives, the Southwest Transplant Alliance says.
Because she gained a kidney, Saltsberg now schedules surgery at Baylor Regional Medical Center of Plano to give back.
Saltsberg knows all too well the future of patients that will need kidney dialysis. She has lived with the process, and she has seen her two sisters struggle with dialysis.
When Saltsberg's father, Jerry died, no one knew he had a kidney disease known as familial glomerulonephritis, a chronic progressive renal disease that runs in families. Jerry, a former photographer for The Ed Sullivan Show, died when Saltsberg was just 6 years old.
With three girls in the family, Roesch, the middle daughter, was the first to learn she had the disease. Just 22 years old and on her honeymoon, she started "blowing up" when her kidneys could not process urine correctly.
"She was propped up in bed and twice her size when she came back from her honeymoon," Saltsberg remembers. "They put her on dialysis."
Saltsberg did not hesitate when she was asked if she could donate a kidney to her sister. After backpacking through Europe, she donated her organ at age 21. Saltsberg had to have a rib removed to give her kidney. Today, kidney donations are much less painful because they are removed by laproscopic surgery.
"I never really cared about me," said Saltsberg. "The hardest part for me was watching her suffer."
Saltsberg's kidney, though, never worked for her sister. It lasted just nine weeks before it was rejected. After 20 years of dialysis, Roesch was 43 when she died in 1990. She had two unsuccessful kidney transplants.
While watching her sister's progress, Saltsberg was working an active outside salesperson when her kidney started having problems processing urine in 1975.
"They told me I had too much protein in my urine," she said. "I thought it would take me 20 to 30 years before the disease would progress into kidney failure."
By 1986, Saltsberg was getting worse. Doctors put her on a renal diet and asked her to eat low-protein food.. Just two years later, she was crawling up the steps because she had so little energy.
"It was never painful, but I just stopped urinating," she said. "I was putting on weight from the fluid and slowly being poisoned."
Saltsberg tried varied types of dialysis and waited 18 months for the just right kidney. She got the call that Baylor had a kidney for her on Dec. 10, 1989.
"I started to scream and jump up and down," she said. "After just four hours of surgery, my kidney started to 'pink' up."
Her sister Marcia Weinreb then went through the same process, receiving her kidney in 1996. She recently had to start dialysis again.
Saltsberg is now determined to help others. When volunteering with the Southwest Transplant Alliance at health fairs, she often asks people "do you want to save a life?" For the last 16 years, she has lived while watching others in the family die.
"I got into the medical field because I wanted to give something back," says Saltsberg. "The most important thing you can do is to sign a donor card and tell your loved ones of your intentions."
Baylor's kidney transplant program is one of the largest in Texas, with 5,000 organs transplanted worldwide. Baylor's donor cards feature the image of former baseball great Mickey Mantle, who received a kidney at the downtown hospital in 1995.
For more details on making an organ donation, contact 1-800-4baylor or Southwest Transplant Alliance at 214-522-0255 or www.organ.org.
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